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Cutis Laxa: A disease that ages the face - It starts today
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Amélie, 17, suffers from an illness that ages her face
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Atteinte de la Cutis Laxa, Cécile revient sur son passage dans Ça se discute, il y a 25 ans. Elle raconte son parcours en livrant un message fort et inspirant ! ▶️ Ça se Discute, inédit, présenté par Estelle Denis, mardi à 21h10 sur #RMCLife et en streaming sur RMC BFM PLAY : https://l.rmcbfmplay.com/Bs | RMC Life
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Tengo 7 años y mi nombre es Zahid Gahel Quinayas Omen. Vivo con cutis laxa, una enfermedad huérfana, y actualmente soy el único caso registrado en Colombia. Esta condición afecta mi respiración y otros órganos, por eso dependo de un ventilador mecánico, me alimento por gastrostomía y recibo hospitalización en casa. Todos los días hago terapias físicas, ocupacionales y respiratorias, y necesito el cuidado de un cuidador las 24 horas. Mis papás crearon una página en Facebook para contar mi día a d
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